Background
Many people feel unprepared for life following discharge from stroke services, with rehabilitation occurring within a harm-reduction framework. However, evidence suggests risk-taking is crucial for identity-making, maintenance and post-stroke recovery, along with re-engagement in valued activities. This work was undertaken following a literature review and a qualitative study exploring the concept of risk in stroke rehabilitation.
Objective
To explore stakeholder perspectives on preliminary findings from an ethnographic study of risk negotiation in stroke rehabilitation, in order to refine interpretation of the study’s results and propose clinically relevant actions.
Method
Stakeholder workshop, with representation from people with lived experience of stroke, stroke rehabilitation clinicians, and stroke support organisations. Following presentation of findings from preliminary research, facilitated small- and whole-group discussion and feedback activities.
Findings
The outputs from this workshop will be used to augment interpretive reflection and refinement of findings from the ethnographic study. Underpinned by Critical Realist philosophy, findings from the workshop, ethnographic study and literature review will support proposal of causative mechanisms explaining stakeholders’ experiences relating to risk during stroke rehabilitation. This has the potential to signal areas amenable to clinical practice changes in relation to post-stroke risk negotiation.
Conclusions
People report difficulties with getting on with life after stroke and taking risks may be an important part of post-stroke recovery. The workshop outputs and findings from this research have the potential to influence changes to clinical practice supporting people to live a good life after stroke.